Friday, October 29, 2010

D'versary

Today was our D'versary...2 years!
(you can click these links and read about our diagnosis and time in the hospital)

I was going to write a meaningful post on how we have grown stronger...blah, blah, blah.
Honestly, I am just too tired!
So instead, I will just repost this poem(?) that I came across back in those early days that I thought was great and helped me come to terms with what we were dealt....

Chosen

Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit. Did you ever wonder how mothers of children with diabetes are chosen? Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.

"Armstrong, Beth, son. Patron Saint Matthew."

"Forrest, Marjorie, daughter, Patron Saint Cecilia."

"Rutledge, Carrie, twins. Patron Saint Gerard. He's used to profanity."

Finally, He passes a name to an angel and smiles, "Give her a child with diabetes." The angel is curious. "Why this one, God? She's so happy."

"Exactly", smiles God. "Could I give a child with diabetes to a mother who does not know laughter? That would be cruel".

"But has she the patience?" asks the angel.

"I don't want her to have too much patience, or she will drown in a sea of self-pity and despair. Once the shock and resentment wear off, she'll handle it. I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I am going to give her has her own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you."

God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness."

The angel gasps. "Selfishness? Is that a virtue?"

God nods. "If she cannot separate herself from the child occasionally, she will never survive. Yes, here is a woman whom I will bless with less than perfect."

"She does not realize it yet, but she is to be envied. I will permit her to see clearly the things I see .... ignorance, cruelty, prejudice ... and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as if she is here by my side."

"And what about her patron saint?" asks the angel, his pen poised in mid air. God smiles. "A mirror will suffice."

by Erma Bombeck

Thursday, October 28, 2010

Gimme some sugar!

Another awesome giveaway over at My Sugar Bugs.

Go check it out!!


I want to win this for our D'versary ;-)


2 years ago...

2 years ago... I didn't "get it"
2 years ago... I had no idea how my life was about to change
2 years ago... my son's fingers did not have a million little holes in them
2 years ago... I didn't have to read a nutrition label before handing out a snack
2 years ago... I had butter in my fridge door, not vials of insulin
2 years ago... I sent my son to school with no worries
2 years ago... I was not sleeping through the night because I had a nursing baby
2 years ago... I was extremely afraid of needles (still not a fan!)
2 years ago... I didn't know anyone with Type 1 diabetes (or so I thought!)
2 years ago... my son would down a cup of milk or water in seconds and ask for more
2 years ago... my son was wetting the bed, every night (he never did that, even when potty training)
2 years ago... I didn't know I would have to make my son bleed multiple times a day
2 years ago... I didn't know I would have to stick my son with multiple needles to keep him alive
2 years ago... I had no idea what a pump was
2 years ago... basal and bolus were foreign words to me
2 years ago... I could leave the house with just our keys to get back in
2 years ago... told the advice nurse I couldn't come in today, will have to be tomorrow
2 years ago... I didn't know my boy's body was failing him
2 years ago... I didn't appreciate the complexities of a normal functioning pancreas
2 years ago... I had no idea what a normal blood sugar level was, let alone a low or high one
2 years ago... I would never have asked my friends and family for donations to charity
2 years ago... JDRF was just another organization I hadn't heard of
2 years ago... juice was something you sometimes drank if you were thirsty
2 years ago... I had no idea what tomorrow would bring, tomorrow was the day we found out Bryce had Type 1 Diabetes

2 years ago... my life was totally different

Tomorrow is our 2 year D'versary.



Wednesday, October 27, 2010

Naked Pancreas in PDX

The amazing Reyna over at Beta Buddies put together this great Naked Pancreas Meme on how we manage our kiddos diabetes:

Here is my NAKED PANCREAS...

1. What kind on insulin management mode do you use?
Bryce has been on the Animas Ping (blue) for a year and a half...LOVE it!

2. How often do you inject/change pump sites?
We change his site out every 2 -3 days depending on how it looks and how his numbers are. I have gone 4 days before. I now put less insulin in the cartridge so it will give me a low cartridge warning when it is time to change it out, otherwise I usually forget (unless there are issues of course) Using the Inset 30 (blue)

3. What type (s) of insulin do you use?
Novolog

4. What are your basal settings ?
6a-9a 0.325
9a-8p 0.275
8p-6a 0.175

5. What are your correction factors ?
12a-7a 225
7a-8p 180
8p-12a 205

6. What are your meal ratios ?
12a-9:30a (breakfast) 1:12
9:30a-5p (lunch) 1:16
5p-12a (dinner) 1:18

7. What do you do for activity and/or PE?
Since Bryce is just in school half day for Kindergarten, we don't have to worry about PE yet. Before recess, he gets a "free" snack of crackers or a cookie (5g)...they test him and give him a correction bolus before if needed, then he can have snack with the rest of his class. For swim lessons and most other sports, we disconnect his pump and give him an unbolused snack if he is under 150. We still haven't quite got it all figured out (neither has his body!)


8. How do you manage Pizza, Macaroni and Cheese, or any other "difficult to manage" foods?
We combo bolus. Pizza doesn't effect him as much as grilled cheese sandwiches or cheeseburgers. Those we combo and also do a temp basal. Oatmeal and donuts are other killers but I think we are figuring it out as we go along.


9. How do you prefer to manage your logs/data?
Since we have been on the pump, I use the ezManagerMax that came with our pump. I glance over his numbers after almost every set change and if they are looking too wonky, will print them out and highlight the highs and lows to figure out what needs tweeking. But just like other experienced Dmamas, I can pretty much figure it out in my head where things are off and need adjusting. Seeing it on paper (or the computer) just confirms it.

So now that I put it all out there, we will probably be doing some changes...but that is the life of a pancreas right.

Anyone else game?
You're up!

falling off a cliff while trying to sleep...

This graph shows Bryce's blood sugars last night/this morn from about 8:30p-8:30am. All day I couldn't get him under 250. Flu shots and Krispy Kreme donuts sure didn't help (not to mention this little cold he has). Ended up doing a set change at 11pm since he was still raising. All of his insulin decided to kick in around 1:30am and as you can see, he plummeted FAST! Then we were fighting lows all night...ugh! Mama needs some coffee today for sure!!

Tuesday, October 26, 2010

Not JUST a Flu Shot

We didn't tell our boys that they were getting their flu shots tonight. When we pulled up to the doctor's office, my 7 year old figured it out. When he said "flu shot", Bryce screamed and darted back into the minivan. I went ahead with the other two boys as my hubby tried to pry our 5 year old out. Though there were cries from my 2 year old, his shot was over and done pretty quick. Even my 7 year old was brave and just took his shot. When they were done, I could hear when Bryce came into the office cuz he was screaming "no, no, no!"
You would think a boy who gets his fingers pricked 10 times a day, that every other day gets a huge needle putting an infusion set under his skin for his insulin pump, and every week has a big needle stuck in him to monitor his blood sugars, would not have a problem with a flu shot!....OH NO!!
Eventually,(thanks to my hubby's muscles) the nurse was able to give Bryce his shot too.

What reward did they want after? Krispy Kreme of course!
Can you say "hello, 415!!"
Ugh!


Monday, October 25, 2010

this is what the sniffles do...


Yep, that is 12 hours of bgs over 200 (with an increased temp basal!!) Surprisingly, no ketones and pretty good behavior.