Every month, I get together with a few D moms for coffee. Our T1 kids range in age from 4 to 14. Some have been doing this for months, others for years, many years. Some are dealing with starting school, others with starting puberty. We have pumpers who moved back to shots, ones that just started the pump, others who have been on a pump for years, and some not interested in even looking at pumps. Animas, Medtronic, OmniPod, pens, syringes. Doesn't matter...we are the same!!!
We are all doing the best we can for our children. We test, we bolus, we count carbs, we analyze numbers, we worry, we fret, we cry.
We seek out others like us because it makes us feel not so alone. We gather for coffee, we read and write blogs, we comment on forums, we participate in fundraising and networking.
So what about those families that are in denial. The ones that close themselves off and don't reach out to others. They back away from those reaching out to them. They think if they just ignore it, it will go away. What happens to these kids?
Today, I heard a couple stories that broke my heart. A family that puts their 9 year old completely in charge of his diabetes....all the testing, carb counts, shots, etc. That couldn't tell you what his blood sugar is because THEY don't test him. A dad who thinks it will go away and therefore doesn't get involved in anything related to D. A boy who passes out then complains of leg pains all the while taking his bg isn't even on their mind. When throwing up on a car drive due to dka (prior to dx), was told to stop trying to get attention. And these were only a few examples.
THESE are the moms that need the support of other D moms. How do we get to THEM?