tag:blogger.com,1999:blog-2855720275973205353.post3290715570798947367..comments2023-06-03T08:00:14.468-07:00Comments on My Sweetest Boy: same and differentDenisehttp://www.blogger.com/profile/07490374648906561675noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-2855720275973205353.post-4941352982643080542011-04-13T13:59:05.380-07:002011-04-13T13:59:05.380-07:00That just breaks my heart. That is too much for AN...That just breaks my heart. That is too much for ANYONE to handle alone, let alone a 9 year old child. It is so sad that parents like his don't take it more seriously. I have heard stories like this and I just can't understand it.<br /><br />I am SO thankful for such a wonderful support group in the DOC and the one I have here locally. I don't know what I did before I had all this wonderful support.Krishttps://www.blogger.com/profile/02317537266719165855noreply@blogger.comtag:blogger.com,1999:blog-2855720275973205353.post-4097535003120474202011-04-13T11:17:57.912-07:002011-04-13T11:17:57.912-07:00I was thinking the same thing... two weeks ago the...I was thinking the same thing... two weeks ago there was a little boy diagnosed who I heard about through one of my husband's co-workers. I was immediately ready to go visit them in the hospital and arranged for them to get their backpack of hope and made sure that they had all of my contact info, but they didn't want any of it and just wanted to be "left alone to figure everything out". To each their own, for sure and I would never want to cross that line, but I just can't imagine. The DOC has been so helpful to me and I am trying hard to find some people locally who are interested in getting together like you do, but there just doesn't seem to be much interest. I feel like I am the only one who wants to. ?? I'm just going to keep trying. :) So watch out people at walmart who are wearing a JDRF shirt or you or your kid has a pump, because I am gonna come talk to you! Ha!! :)Leighhttps://www.blogger.com/profile/09463424433433553534noreply@blogger.comtag:blogger.com,1999:blog-2855720275973205353.post-42843558373590814162011-04-13T10:08:18.710-07:002011-04-13T10:08:18.710-07:00Denial is a scary place to be. I was alone for so...Denial is a scary place to be. I was alone for so many years, it is one of those things that you don't know what you are missing. <br /><br />I also wish we could reach out to every single one. That is part of my motivation to keep blogging. If I can reach one family and introduce them to the DOC, then that is a wonderful feeling!Merihttps://www.blogger.com/profile/09752883120541646427noreply@blogger.comtag:blogger.com,1999:blog-2855720275973205353.post-35888257762074458622011-04-13T09:19:49.063-07:002011-04-13T09:19:49.063-07:00It breaks my heart. I hear stories, too... And I ...It breaks my heart. I hear stories, too... And I don't understand it. It makes me hurt for those kids and their futures...Hallie Addingtonhttps://www.blogger.com/profile/11331775099035220917noreply@blogger.comtag:blogger.com,1999:blog-2855720275973205353.post-68976702837412535582011-04-13T07:59:40.318-07:002011-04-13T07:59:40.318-07:00I don't get it. I just don't! At our ele...I don't get it. I just don't! At our elementary there are 3 kids with T1D and 1 of the other DMama's and I are in the nurse's office CONSTANTLY checking supplies and numbers and just . . . well, being tehre sometimes. The 3rd T1D's mom has never been active or involved in his care. The nurse handles everything at school and I have on more than one occasion offered supplies when he is low. The nurse hints at the fact that poor (insert name) doesn't have much support at home. Really; I just can't wrap my brain around that. I am just not wired that way . . . and neither are ANY of us in the DOC. That's why we run to each other with these stories and weep on one another's 'shoulders' with sadness for the kids who must feel pretty alone. <br /><br />I like Reyna's comment about us being elite . . . like elite athlete Mama Pancreases. Maybe we need to reach out to the others and train them up ;)Amyhttps://www.blogger.com/profile/02826248976364694184noreply@blogger.comtag:blogger.com,1999:blog-2855720275973205353.post-83723864223337327792011-04-13T07:02:24.209-07:002011-04-13T07:02:24.209-07:00My heart breaks for those kids. Parents who don...My heart breaks for those kids. Parents who don't take the time to educate themselves on something as serious as D are not going to change anyways. I think all we can do is pray for those children and hope with all our hearts that they find a supportive community when they get older.Lorahttps://www.blogger.com/profile/07192247387107228743noreply@blogger.comtag:blogger.com,1999:blog-2855720275973205353.post-60926769817365120782011-04-13T03:27:36.357-07:002011-04-13T03:27:36.357-07:00I am unsure and wonderful question. I often think...I am unsure and wonderful question. I often think of these families too Denise. I do think that persons who take the time to write and read the blogs and the forums and the websites are definitely an "elite" crowd. By "elite" I mean they are the parents of CWDs that are wanting support, understanding, and knowledge...and to support others...the populatin that we are "running" into in our computers does not reflect the population at large.<br /><br />I wish I had an answer...Anonymoushttps://www.blogger.com/profile/00895126112651188056noreply@blogger.comtag:blogger.com,1999:blog-2855720275973205353.post-69695117068952433492011-04-12T23:19:16.538-07:002011-04-12T23:19:16.538-07:00I cannot even fathom. I am angry and heartbroken a...I cannot even fathom. I am angry and heartbroken at the same time. To know that there is support, whether in person or on the computer, is so important especially with something as all consuming as D. <br />When I'm at a loss, I pray; so that's what I will do...pray that these 'lost' families will find their way to help and support.Denise aka Mom of Beanhttps://www.blogger.com/profile/05726979027850619807noreply@blogger.com