So I write letters, send emails, post on Facebook, make a video. Do I want a pity party?? HELL NO! I just want awareness. I want understanding. I want people to know what I have to go through to keep my little boy alive. To keep him happy and healthy. I want them to understand why I am so tired and why I am always late. It is not an excuse. It is life with D.
I don't want your pity. I am strong. WE are strong. I just want your $ (for a cure that is!)
Amen!
ReplyDeleteAbsolutely.
ReplyDeleteI totally know where you are coming from with this. It is hard to lay it all out there.
Truly the life we lead in caring for our Type 1 kids is so ridiculous it is hard to explain to anyone. Really to lance your child's finger 8-12 times daily. To measure ALL the food your young child is eating, taking into account what is spilled and/or dropped, giving medication for the food...and then the medication's side effects can be seizure, coma, and/or death if given in too large of a quantity...this is just "crazy talk"...not even factoring in that you need to be an activity predictor and a food content surveyor...High glycemic index? "oh I better give a little less insulin...he may spike and then bottom out". Not to mention site changes, sites gone bad, sick days, and the siblings and how it affects them. Marriages and how it seeps into that. Seriously, I just made myself depressed typing all of this...LOL.
(((HUGS))) and GOOD LUCK!
I love it! Hell no - i just want your money!! hahaha!! I totally get it. Good luck!
ReplyDeleteMy sentiments exactly! :)
ReplyDelete