So I write letters, send emails, post on Facebook, make a video. Do I want a pity party?? HELL NO! I just want awareness. I want understanding. I want people to know what I have to go through to keep my little boy alive. To keep him happy and healthy. I want them to understand why I am so tired and why I am always late. It is not an excuse. It is life with D.
I don't want your pity. I am strong. WE are strong. I just want your $ (for a cure that is!)