trying this again...

It has been quite a while since I posted anything. Been reading lots of blogs from other D-moms lately. They make me cry, they also give me strength. So much goes into being a mom of a child with diabetes. It is so draining. There is so much that we do to try to manage our child's diabetes that people outside our D-world have no idea. I am hoping to get back into (not that I was ever consistent before) blogging about our life with diabetes. Maybe it will educate a few people that don't know what is involved, maybe another D-mom will stumble upon it and know they aren't alone, maybe it will just help my mushy brain to process all this D-stuff swirling around in it. (maybe I won't forget my password so I can actually get on here and do it!)

LOST

So my hubby and I watched the first episode of LOST the other night. (yes, I realize the final season is airing soon....so we are late!) Anyhow, it got me thinking that if Bryce survived a plane crash and ended up on a deserted island, it wouldn't matter what he or anyone else did, he could only survive a couple months. Since he is on a pump, at least he always has a couple days worth of insulin on him...hopefully enough till the rescue crew finds him (and not the scary monster thing!)

paranoia

Every once in a while I worry that my other boys will get diabetes. Mostly I worry about Drew. He is too young to tell me how he feels. Somedays it seems he is drinking a lot of water and that I am changing a lot of diapers. Of course, it is easy to check...just test his blood sugar levels. We have enough meters afterall! Well I have done it twice now. Drew thinks it is great when I pull out the poker for him. He hands me his little finger and I prick it. He is so fascinated by the little drop of blood and goes to touch the test strip with it (last time he licked his finger after...wasn't expecting that!) Never cries or flinches. 125-Whew!!! Until the next trip of paranoia that is! At least I know he would be easy to test if he did get it :-)

Bryce's Team: Wipeout Diabetes

We have a team for the JDRF Walk to Cure Diabetes!!!

Join us or donate to 'Bryce's Team: Wipeout Diabetes'

Check out our team page:

http://walk.jdrf.org/index.cfm?fuseaction=extranet.personalpage&confirmid=87391278

midnight honey

Diabetes doesn't sleep...

What that means for us is that Bryce's blood sugar levels need to be tested in the middle of the night to make sure he doesn't go too low. Being the super amazing dad/husband that he is, John takes care of these midnight and 3am tests (he figures I have to take care of Drew, so he will take care of Bryce. Man I love that guy!!) There have been plenty of times where John will be battling a low while I sleep, totally unaware of what is going on. Now in case you are wondering, if he is just borderline low, we can turn off his pump, maybe give him a sip of milk and all is fine but if he is really low, he needs fast sugar. Our go to is usually honey. Last night, we were both up (Drew was screaming like a mad man) so I went in with John when he brought in some honey. John sat Bryce up and told him he had honey. Without even opening his eyes, Bryce devoured the spoonful of honey, making sure to lick every little bit of it. It was quite an amazing thing to watch. And when he was done, he went back to sleep. BG up to 150...we went back to sleep too :-)

diabetes camp

A couple weeks ago, we went to Gales Creek Camp for children with diabetes. The preschool camp consisted of us and 7 other families with 4-5 year olds with diabetes. It was just one day and an overnight (when the kids get older, camp runs for a whole week.) While the kids played games with the camp counselors, the parents met to share stories, ask questions, and go over things like how to prepare for sending your kid to school, latest research in finding a cure, etc.

The boys seemed to have a really good time. Here are some memorable things from our time at GGC:

*we rocked out family skit night (Bryce sang "I've got diabetes!" and we backed him up "he's got diabetes!"...this little 'rap' was a fave of the counselors. Other verses went "I'm ready for a poke", "Time to get a new set", etc)

*Bryce got this obnoxious whistle from the camp store (every time he blew it, all the staff would look around wondering of it was time to gather everyone "on the log")

*swimming in the pool was fun (until Jaden swallowed a gallon of the water and proceeded to throw up into the pool- Everyone out!!)

*Jaden said the food was amazing (grilled cheese on white bread-w/american cheese for lunch and huge fluffy pancakes for breakfast)

*Drew was dropped off by my mom at dinner time (he was dubbed 'PB boy' cuz after snack, he was covered head to toe in peanut butter)

*night time blood sugar tests (we stayed in the boys dorm with 4 other families and all night long I could hear the click click of test vials opening, lancing devices cocking, and fingers being poked)

*after breakfast, Bryce was really out of it and zoning (he was 529!! bolused him according to the pump, later got an unbolused snack, when tested before lunch he was 36! wtf?)

so long

It surely has been a while since I last posted. So long that I forgot my login and password!! Of course with no time to figure out what they were since I am chasing a 15 month old, battling highs and lows, and trying to keep cool, it meant a couple more weeks with no postings. Go figure, I finally have some time with the two oldest playing outside and the little one napping. So I get logged back in and the baby wakes up....well hopefully it won't be too long before I can actually update you all!! Gotta get Drew!!!