Monday, March 30, 2009
The insulin pump for Bryce came in today. BIG box with lots of stuff. No wonder they send out a trainer to go over using it. She will be out here on Wednesday to get us started. I know that John and I will have to try on a "set" (the tubing inserted under the skin that administers the insulin drip) I hate needles, so I am not looking forward to that part! I will pretend to be brave for my sweet little guy though. Anyhow, we are hoping to have him pumping very soon....
Friday, March 27, 2009
We have been wanting to get Bryce on an insulin pump for a while now. From what we have heard, it will allow us so much more freedom. As things are right now, he gets two shots a day. His morning shot has two types of insulin, a short acting (Novolog) to cover breakfast and an intermediate (NPH) to cover lunch. This means that he needs to eat lunch as close to 4 hours after his shot because that is when the NPH kicks in. In the evening he takes another shot that has the short acting (Novolog) to cover dinner and a long term (Lantus) that lasts 24 hours. Because of the long term insulin, he needs to get this shot at the same time every night. This means that we have a very rigid meal schedule of when he needs to eat combined with how many carbs at those meals. Very little leeway with regards to how hungry his is or isn't or other circumstances that come up. With a pump, he will only be on the short acting (Novolog). The pump will administer small doses throughout the day as a "basal" dose (much like the long term, Lantus) and when he eats, he will get a "bolus" dose to cover how ever many carbs he is going to eat. This means if we wants a bagel one day, he can bolus for the whole thing. If we go to a birthday party, he can have an extra cookie after eating cake and ice cream. If he isn't hungry, we can bolus for less carbs. We won't be stuck to a schedule. We won't have to force him to eat when he doesn't want to. We will still count carbs but we won't have to give him a set amount, no more, no less. He will be able to eat like any other kid. Freedom, peace of mind. We can't wait!!
We were hit by the stomach bug again last week, only one month after the last episode. This one was short lived and only got Bryce followed by Jaden (though we all felt blah) Bryce did get large ketones. The only way to get rid of ketones is with insulin. Luckily Bryce was done throwing up so could somewhat eat. The ketones were persistent and I needed to give him another shot however his blood sugar levels were too low. I ended up having to feed him tablespoonfuls of honey to finally get him high enough! It took over an hour, but he got there. Ketones went away, so did the bug.
The crazy thing is ever since this bug, Bryce's levels have been great! We significantly lowered his morning dose cuz he was going low. I was getting bs levels in the 300s after breakfast and they are now closer to 150. (Target range is 80-200.) Of course I am more freaked out about him going too low so we test a lot right now. Couple days ago he was 44 at lunch (even though he was 236 only 45 mins earlier!) Maddening for sure! But looking at the big picture, his numbers are much better. Thanks bug???
Thursday, March 5, 2009
Earlier this week, we had an appointment at the Diabetes Clinic to discuss putting Bryce on an insulin pump. While waiting for our educator, I over heard the doctor talking to another mom and it sounded as if she was just finding out her child was diabetic. I talked to her for a few minutes though would have liked to talk to her longer. I so remember being in her shoes...in a state of shock, wondering what was going on. How was it possible for my little baby to have diabetes? He/she was just drinking and peeing alot....who knew that meant diabetes? What is this was going to mean for my child, for the family? How could I give my child shots everyday and test blood sugars? and this is forever.....I wanted to cry with her. I still can't stop thinking about her and her 4 year old daughter who jumped and played unaware of what was going on. I was there only a few months ago, crying as if my world had crumbled around me. Since then, diabetes has just become a part of our life. Some days are easier than others but overall, it is manageable. Do I ever not think about Bryce's diabetes? No...I am always checking the clock, calculating and recalculating his carbs, trying to decipher the numbers, hoping he doesn't go low but not wanting him to stay high either. I hope in the short time I was able to talk to the other mom, that I was able to convey to her that it will get better, once the shock and information overload come to an end. There is so much support out there and people with diabetes grow up to do wonderful things, just like anyone else. I hope to see this family again and maybe that time we will laugh together about the crazy things we and our children do because of diabetes.